ONE brave and charitable young lady from South Harting is preparing to embark upon a marathon like no other.
Tessa Nelson, 22, is preparing to complete a solo off-road wheelchair run between Worthing and Brighton piers for charity.
Tessa has ML111, also known at Pseudo hurler polydystrophy, which affects only one in 485,000 - 800,000 live births worldwide.
Tessa was diagnosed at the age of three.
She said: “I am wheeling between Worthing pier to Brighton pier to raise money for three charities that have supported me throughout my life and now it’s my time to give back. Please sponsor me at my Just Giving page!”
After a short time at Harting Primary School, she attended St Cuthman’s at Stedham, until it closed, and then St Anthony’s in Chichester. From there she went to Chichester College and studied drama.
She used to love sport, gaining a black belt in karate, playing golf and doing cross country running and trampolining.
However, soon after leaving college her hips became badly deformed, meaning she was no longer able to walk. There is not enough bone left to have a replacement, so she is now confined to a wheelchair.
Tessa is also a keen bird-watcher, so to enable her to get about off hard surfaces, her family bought her an off road wheelchair.
Dreams Come True in Midhurst supplied her with the electric trike attachment for her wheelchair in order to give her more freedom. This is what she will be using to do her charity ride.
Tessa will be donating the funds raised to the charities that have helped her throughout her life and given her the courage to organise this event by herself.
These will include The Point in Chichester, Sparkles and Surprises - a charity that takes the families of disabled children and young adults on holiday together, and The MPS society (Society for Mucopolysaccharide Diseases).
Tessa will be starting at 10am on September 14.
For further details or to help, visit www.justgiving.com/tessa-trek